Wednesday, August 08, 2007

Inflammatory Breast Cancer

I feel like I'm arriving really late to this party, but I saw these posts about Inflammatory Breast Cancer, linking back to Toddler Planet and I kept meaning to go read her blog. Finally, over the last two days, I've read thru her archives. She's asked people to copy and paste this on their blogs, in an effort to get the information out to as many women as possible. So here it is.

I also urge you to go read this woman's blog. She writes with such candor and bittersweet humour and most of all, love, that it's breathtaking. But bring tissues. You're going to need them.

We hear a lot about breast cancer these days. One in eight women will be diagnosed with breast cancer in their lifetimes, and there are millions living with it in the U.S. today alone. But did you know that there is more than one type of breast cancer?

I didn’t. I thought that breast cancer was all the same. I figured that if I did my monthly breast self-exams, and found no lump, I’d be fine.

Oops. It turns out that you don’t have to have a lump to have breast cancer. Six weeks ago, I went to my OB/GYN because my breast felt funny. It was red, hot, inflamed, and the skin looked…funny. But there was no lump, so I wasn’t worried. I should have been. After a round of antibiotics didn’t clear up the inflammation, my doctor sent me to a breast specialist and did a skin punch biopsy. That test showed that I have inflammatory breast cancer, a very aggressive cancer that can be deadly.

Inflammatory breast cancer is often misdiagnosed as mastitis because many doctors have never seen it before and consider it rare. “Rare” or not, there are over 100,000 women in the U.S. with this cancer right now; only half will survive five years. Please call your OB/GYN if you experience several of the following symptoms in your breast, or any unusual changes: redness, rapid increase in size of one breast, persistent itching of breast or nipple, thickening of breast tissue, stabbing pain, soreness, swelling under the arm, dimpling or ridging (for example, when you take your bra off, the bra marks stay – for a while), flattening or retracting of the nipple, or a texture that looks or feels like an orange (called peau d’orange). Ask if your GYN is familiar with inflammatory breast cancer, and tell her that you’re concerned and want to come in to rule it out.

There is more than one kind of breast cancer. Inflammatory breast cancer is the most aggressive form of breast cancer out there, and early detection is critical. It’s not usually detected by mammogram. It does not usually present with a lump. It may be overlooked with all of the changes that our breasts undergo during the years when we’re pregnant and/or nursing our little ones. It’s important not to miss this one.

Inflammatory breast cancer is detected by women and their doctors who notice a change in one of their breasts. If you notice a change, call your doctor today. Tell her about it. Tell her that you have a friend with this disease, and it’s trying to kill her. Now you know what I wish I had known before six weeks ago.

You don’t have to have a lump to have breast cancer.


Anonymous said...

Better late then never!

Nice of you to post this for her!

Implings Mama said...

Nothing like a post like this to put the rest of your life into perspective.

Thanks for sharing this important information.

BOSSY said...

Suddenly Bossy is certain she has silent lumps all over her frame.

MsCellania said...

My mother's best friend died of this 2 years ago. They couldn't figure out what it was, and she had it for MONTHS before they figured it out. She was hospitalized in June, died in August.
Horrible, horrible disease.

Kevin Charnas said...

Wow...I had no idea...

I'm glad that I do now and will spread the word!

Buffy said...

Thank you for this....