After I picked my jaw up off the floor, I said (calmly - I was so impressed with myself) that I know she wasn't 200, but that a 196 2 hours after eating was too high and that meters have a 10% +/- error rating. And that I thought something needed to be done. He agreed and checked her blood sugar again - three hours after her lunch, she was 116. Four fucking points away, again, from an abnormal fasting reading. What is up with the four points?
He called the local endo group and spoke to one of the doctors there. The upshot is that for the next two to three weeks, I'm to check and log Boo's blood sugar before every meal as well as two hours and three hours after every meal. She's used to grazing all the time, so I'm going to have to get more disciplined about meal and snack times.
I'm also going to have to get used to poking those tiny, tender little fingers. Again.
32 comments:
What about doing an A1C draw?
I think the monitoring will definitely catch more than that, but it was my first thought...
Julia, I hate this for you SO SO SO freaking much. And also for Boo's fingers.
He didn't think an a1c would show anything, since, if she does have it, it's in the very early stages.
If I get more than two days of readings near or over 200, I'm calling back and demanding she get an endo referral.
You are such a good mom, Julia. I can't imagine what this is like for you. I hope everything is just PERFECT over the next few weeks and that these past few days were just a fluke thing.
Kisses to Boo's fingers.
{{{Julia}}} I don't know what to say. I just so hope its not that.
She is so beautiful.
Oh, I'm sorry you're dealing with this.
Julia,
I'm so sorry. It's just a nightmare, the not knowing.
Did they mention doing an islet cell antibody test? They did one on Joseph at diagnosis-- we got the results very fast.
Even if it's in the very early stages (it was for Joseph), if she has it, those antibodies would likely be present.
It's just insane that you have to wait-- and do all those damn tests on those little fingers.
I really, really hate this for you.
(((Hugs)))
Oh Christ, Julia. I'm with Sandra - surely they can tell you something now. I'm thinking of you guys.
Julia,
Just hoping every test you do for the next few weeks is absolutely normal. I wonder if you could try to get boo in the trial net study. They would then test her for the antibodies for free. I hate the 4 freaking points thing but would worry the hell out of me. Thinking of you and BOO.
Wendy
Poor little Boo. What a sweetie.
Oh, man. I, like, Kerri, hope this might have been a fluke thing. I'll be thinking of you and the Boo.
Sending you all the best.
I'm with Sandra. Why put Boo's fingers through that when the doc can just test for antibodies.
I wish you luck in getting the endo referral.
She is absolutely gorgeous in that photo.
Hugs to both of you.
Awww, Julia! I'm so sad about this. I really, really, really hope it's a fluke thing. I hope it's nothing. I hope all readings are perfect.
I'm so sorry boo has to go through all the tests the next few weeks, but I hope it is reassuring. Please keep us updated.
shit!
(((((((hugs)))))))
Poor thing...and I can't believe the ped would nitpick over 4 points!
Good for you for being so proactive!
Keep on keeping on, Julia. You are being proactive, and you are a wonderful mother. Stay strong and you'll get the answers you need soon. I know it.
Kisses to Boo's fingers from here, too.
this sucks. i'm sorry.
(she really is an unbelievably gorgeous child.)
Crap Julia!
What a freaking mess. I can't believe they can't give you any answers right now. I don't know how you remained calm. I think I would've flipped.
I can't imagine a doctor just wanting to blow that off! Good for you for sticking to your guns. What about arm testing for her instead of the tiny fingers? (just asking since I don't know how accurate that is in children)
oh, Julia...*hugs*
That fucker. Reminds me of my ped, who wanted me to come back on monday for a fasting bg - when I had high ketones and high sugar in my urine.
poor you. poor boo.
sweet jesus, you don't deserve this.
Hoping for two weeks of normal blood sugars for Boo. And good for you for standing up to the doc.
Thinking about you and Isobel this morning Julia...hoping of course she woke up dry. Your diabetes family in cyberspace cares deeply.
Ellen
Wow. I’m sorry. I know what this feels like and all I can say is I’m sorry.
The thing I couldn't stand most if I had diabetes was poking myself. I can't imagine having to poke those cute little fingers and then looking at those cute little eyes as they hurt. (Even if she's tough, I couldn't bear it)
You're a good mom.
Forgot to mention: I'm having a name-my-blog contest, and if you win it's a one year subscription to Real Simple Magazine.
Thanks for posting ;)
Good on you for fighting your corner and like all the others I send hugs to you and kisses to Boo's sweet little fingers.
Sweet Mother Of God, Julia, not again!
Poor Boo. Poor you.
(She's beautiful, too. But you knew that.)
Thinking of you
well that is suckful from every single angle.
Hugs Hugs and More Hugs
I can't say how sorry I am to hear this. You're incredible, and this is so unfair. We're sending good thoughts your way.
That is heartwrenching. Good luck, your daughter is beautiful
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